Scattered Thoughts . . .

As some of you already know, I was down in Boston for a short hospital visit with my specialists a few weeks ago.  These doctors are the best in the world for my illness and they recently opened the first clinic in the US that is geared specifically to Mastocytosis.  Anyway, while we were down there a few weeks ago, a few different tests were ordered.  We opted to avoid the tests while in Boston for two reasons.  The first reason is there is usually a fairly long wait at the lab.  Considering this, it would be much easier to just have the tests done by my primary care physician at home.  The second reason I avoided the tests in Boston was because the tests take a lot out of me.  Just the four hour drive to and from Boston wears me out considerably.  That alone would knock me down.  Add these tests into the mix and the drive back home is quite lousy.  So, we arranged to have all my testing done with my primary care physician this time. This group of test results (mature tryptase, to

Well, today will be a down day.  My health crashed last night.  It came on rather suddenly too.  Thankfully we were home at the time. All of a sudden I had gastro-intestinal pain, nausea, dizziness, weakness, difficulty breathing...  I spent a long time in the bathroom holding down vomit while it was coming out the other end, over and over.  I was fighting loss of consciousness until my heart responded causing an excessively high heart-rate to make up for a severe drop in blood pressure. I knew then that it would be a long night and that today would not be much better.  I certainly do not feel I can wander any further than a matter of feet from the bathroom. The biggest problem with this situation last night was that I made a beeline to the bathroom without grabbing my medications, including my epi-pen.  I had already changed into my bedtime clothes so my emergency meds were next to the bed in my pants pockets.  I will need to do something about fixing that for the future.  So I wa

I am so far behind in managing my websites that I am finding it quite overwhelming.  My health has been so poor over the past four months that I have fallen behind in everything.   I have a piano website that is in desperate need of editing.  I have an art and photography website that needs so much work that it is not even operational at this point.  And, to make matters worse in how I feel about falling behind, I have a lot of friends whom are really looking forward to seeing this art and photography site.  I happened to make some headway on my art and photography website last night and this morning.  I hope to have that website up and running, with a working shopping cart, within the next week or two.  Of course, I have said this before...  Not only have I fallen way behind in managing my websites, but I am also feeling a bit overwhelmed by all the house repairs/renovations we need to squeeze into our short summer season.  I have not accomplished even half of what I planned to ac