Scattered Thoughts . . .

Sometimes... you make a stupid mistake and then it somehow snowballs into a series of mistakes.  Sometimes... these mistakes are really nothing worth mentioning in the big scheme of things and sometimes they are pretty significant mistakes. Right now, I am paying the price for a pretty significant mistake which snowballed into a series of mistakes. When Sheila and I were getting ready for bed last night, I quickly realized that I had missed my dinnertime dose of medications. This alone is serious enough to cause anaphylaxis and a myriad of additional debilitating, nauseating, disgusting and dangerous symptoms. On the positive side, my health hadn't crashed yet as it usually does when I make this mistake so this was good news. (...probably because of the additional medications I took over the weekend so we could safely travel to Burlington for a short cruise...) This means I had time to correct this stupid yet potentially dangerous mistake.  I took out my nighttime dose of medi

Struggling with Systemic Mastocytosis, in any of its forms, makes the ability to be productive both difficult and frustrating. The desire to be productive is there... The desire to accomplish just one small thing on our continually growing to-do list is there... And, the frustration of how this insidious illness hinders all we try to do is always there. Those of us with this illness are familiar with the occasional "good" day. We call these occasional days a "good" day but, for us, "good" is a relative term. For us, good simply means this moment is better than the previous. In reality and more accurately speaking, all days with this illness are a struggle, at best. Some moments are just better than others and it is these better moments which we refer to as "good". Sometimes, however, a week such as this past week just slowly spirals downward. It can start with one noticeable symptom... in my case this week, I noticed a problem with my vision.