Another Sunny Day After A Stormy Night
It was our second sunny day in a row today! First thing this morning, we headed up to the hospital to see our warrior princess and her parents in their new PICU room overlooking Lake Champlain and the Adirondack Mountains. We picked up some coffee and breakfast for ourselves as well as for Whitney and Wayne and continued on to the hospital.
We were fortunate this morning to have arrived early enough to meet with the team of doctors. Although Ellie had a nice burst of energy and consciousness yesterday and seemed to have a great day (albeit with some visible pain)... which was perhaps the most "normal" day for her since being in the PICU... she had a rough and rather dangerous night through the night. Naturally, the doctors addressed this while also showing concern about her continuing struggles and evolving problems. Ironically, Ellie was awake during this doctor visit and seemed to be listening intently as the doctors talked and carefully examined little Ellie.
Ellie remained stable this morning which is great news after a slightly stormy night for her. I don't think Whitney and Wayne got much of any sleep last night either. I know that Sheila and I are exhausted (we've been at this hospital most days over the past nine months for our own medical issues and other family members) but they must be "exhausted x 100" at this point. On the positive side, this larger room in the PICU allows for a larger bed for them... and the view is great too.
Our warrior princess remained awake throughout the visit with the doctors this morning and then ever so slowly dozed off afterward. She seemed to be fighting falling asleep as she tightly grasped mom's finger and the nurse gently stroked her head. After about a half hour, she dozed off enough to have loosened her grip on mom's finger so she could get to her now cold breakfast.
It was another beautiful day today and although Ellie remains in critical condition, she seemed to have a relatively good day too!
We were fortunate this morning to have arrived early enough to meet with the team of doctors. Although Ellie had a nice burst of energy and consciousness yesterday and seemed to have a great day (albeit with some visible pain)... which was perhaps the most "normal" day for her since being in the PICU... she had a rough and rather dangerous night through the night. Naturally, the doctors addressed this while also showing concern about her continuing struggles and evolving problems. Ironically, Ellie was awake during this doctor visit and seemed to be listening intently as the doctors talked and carefully examined little Ellie.
Ellie remained stable this morning which is great news after a slightly stormy night for her. I don't think Whitney and Wayne got much of any sleep last night either. I know that Sheila and I are exhausted (we've been at this hospital most days over the past nine months for our own medical issues and other family members) but they must be "exhausted x 100" at this point. On the positive side, this larger room in the PICU allows for a larger bed for them... and the view is great too.
Our warrior princess remained awake throughout the visit with the doctors this morning and then ever so slowly dozed off afterward. She seemed to be fighting falling asleep as she tightly grasped mom's finger and the nurse gently stroked her head. After about a half hour, she dozed off enough to have loosened her grip on mom's finger so she could get to her now cold breakfast.
It was another beautiful day today and although Ellie remains in critical condition, she seemed to have a relatively good day too!
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