Scattered Thoughts . . .

This morning I wrote about recovering from a painful week of lousy health... I think I spoke too soon... I had slept all afternoon which is very much a typical day for me. I really need to lay down for a few hours everyday. This is pretty much a requirement for survival. When I avoid that daily nap, my health quickly deteriorates. So, I slept most of the afternoon but, when I awoke, I wasn't feeling "right".   I don't know what it was, but something just didn't feel right. I took my dinnertime dose of medications and we started on dinner.  I wasn't hungry in the least though and was feeling generally lousy. Within minutes after dinner I found myself back in the bathroom with worsening health again. I had some relatively minor dizziness, nausea, cramping, weakness, and my legs were not cooperating. This quickly deteriorated into some typical Systemic Mastocytosis lower GI problems including its unique brand of diarrhea. Oh, it has been a fun week. When

The six foot tall piles of snow outside our bedroom window have now melted enough to allow the early morning light to stream into the windows affording me a view of the kayaks and sailboat sticking out of the snow in the yard. This, naturally, reminds me that the boats and car roof racks will need some work before we can take advantage of the incredibly short boating season here in Vermont. The melting snow also reminds me it is Springtime and I need to get started on my to-do list which was put on hold due to weather conditions. I have plenty of home improvement projects which need to get done too but getting the boats ready for summer is always the first priority. I have learned that if I delay getting the boats ready, it will be too late in the short season to even try to get the boats ready and then we never get out on the boats at all.  My focus is on getting the boats ready for use for the start of summer in June... and that gets me thinking about getting back out on Lake G

I was going to write that my health has been quite lousy the past week but, upon thinking about it more clearly in somewhat more stable and better health, my health really has been quite lousy for the past three or four months and quite brutal the past week. A good portion of the past week has been spent being nauseated and ill in the bathroom. I've had the usual breathing difficulties, vision problems, tremors, twitching and some relatively minor signs of impending anaphylaxis but mostly have been struggling with lower gastrointestinal issues this past week. I never even wandered farther than about 30 feet of the bathroom for a few days! Now that my health seems a bit more stable, I am dealing with the usual post-episode bone and joint pain. My long bones... mostly my leg bones... and my spine are inflamed. My joints scream whenever I put any weight on my feet. To say I am "uncomfortable" is a bit of an understatement. That being said, I think my mood only soured eno