Scattered Thoughts . . .

A Mastocyctosis Angel, created by a fellow patient and gifted to me... a symbol of compassion and energy. Gift of Extra Spoon Since many of you reading this blog are actually personal friends with me already, you know that I've been extremely busy for the past two months with family events. Whenever I get busy in any aspect of my life, all other areas of my life must be put on hold. I simply do not have the energy nor health to focus on more than one thing at a time. Every now and then, I get newly diagnosed patients asking for my help, advice and guidance. Just this past month, I received a number of requests for such help but I have been silent in my responses and feel I should try to explain my situation.   If I get involved in helping newly diagnosed patients, nothing else in my life gets done. There is no additional energy for anything beyond what I must focus on at any given time. Systemic Mastocytosis literally sucks the life right out of those of us strugg...

This is our first week since Adam has left for basic training so the house has seemed unusually quiet lately. This evening, however, the grandkids visited for dinner which changed things up and into a bit of a hectic pace... which, believe it or not, was a nice change. These kids really are a piece of cake whenever they visit us though. We had a nice dinner, some cake that was leftover from Adam's going-away party, some little snacks and even watched a couple of movies. Of course, the kids also had a chance to play with toys that reside in our home... especially the train table. The train show is quickly approaching and this will be the first show for the kids. I'm not sure they understand where we are going just yet but they seem excited nevertheless! It will be fun watching them at the show... unless stimulation overload takes over, of course. Anyway, here are a few photos from this evening... Kenzi...