Scattered Thoughts . . .

W e were supposed to head out of town this past weekend for one of the largest train shows in the US but I have still been struggling with this latest and very long bout of COVID as well as a secondary infection and other secondary health issues.  My health had been slowly improving over the past week (finally) but I was still not feeling well enough for a trip out of town.  Actually, it was not even a close call.  I definitely was still not feeling well enough to do anything other that a few minutes of household chores. Truthfully, due to contracting COVID yet again during our first trip out of town since the before the pandemic, I have no desire to risk going out of town for the foreseeable future.  This virus is far too contagious and far too debilitating especially when combined with my primary illness.  Besides, every time I get this insidious virus, I'm sick for months and things get dangerously bad every time.  It seems like whenever I let my guard down slightly and venture

I finally tested negative for COVID and we needed a few things from the market so we headed out of the house tonight.   This was my first time out of the house since we were in Manhattan the week before Christmas so I've been stuck in the house for quite some time.  Tonight, I quickly learned that I'm still not ready to be out and about. I'm definitely exhausted and that was the first thing I noticed while walking down our first aisle at the market.  My breathing isn't great but it has been far worse in the past.  I was breathing more heavily than I should have been simply by casually strolling down a couple of aisles in the market.   I just generally feel lousy and that was very noticeable tonight before we finished our first aisle.  My nose is still running a bit but that is so minor that I typically would not even mention it.  I mention it only to make note, for future reference, that my nose is still running. Overall, I'm feeling lousy and still want to stay ho

For the most part, today was yet another rather miserable day. I thought I might get to writing more about our trip to Manhattan a few weeks ago but I'm feeling so lousy today that I opted to avoid writing about the trip.  At the moment, due to getting this horrendous, lingering, debilitating virus during this trip, I have absolutely nothing good to write about this trip nor do I want to travel ever again so it is best that I do not put any of my current feelings into writing.  This sentiment about travel will likely change...  in time...  perhaps a very long time...  but, at the moment, this is how I feel.   I slept most of the day, again, and I generally feel quite miserable.  I had a little bit of energy after sleeping most of the morning but that only lasted about a half hour before I was feeling quite miserable again.  In that half hour, I managed to fix my telephone line in the house and I wrote about that in a previous blog entry.   I have a sinus headache due to a sinus inf

I noticed today that my runny nose has now changed from being a clear, slightly viscous liquid to an opaque yellow mucus which is a sign of my body fighting off an infection so I contacted my doctor's office to ask what I should do.   I was told that since I'm past the 10 day quarantine period then they want to see me tomorrow or I need to head to urgent care if I can't get an appointment tomorrow.  My doctor's office is overcrowded so, lately, it has been difficult to get a same day appointment so I wouldn't be surprised if I need to head to urgent care instead. So, in anticipation of my doctor's scheduler asking if I am displaying any symptoms of COVID and/or have tested positive, I decided to test again this evening...  It is two weeks into this horrendous virus and I am still testing positive! My fever still comes and goes in waves.  I have a cough and I'm coughing up phlegm.  As I already mentioned, my runny nose has changed from clear fluid to opaque

I finally managed to slow down my runny nose and watery eyes enough to get some sleep.  That was brutal for a few days!  Pumping a bunch of extra H1 blocker anti-histamines helped with this significantly.   Because I was experiencing the cascading anaphylaxis symptoms (twice in two days), I decided to use different types of H1 blockers to stabilize my body...   Benadryl, Periactin (a high dose emergency medication), cold capsules...  I would alternate from one to the next every two hours.  This seemed to knock down the cold/flu-like symptoms as well as keep me away from anaphylaxis for the past day so that is good.   All those extra anti-histamines also helped me get some sleep.  I was exceptionally drowsy from the medications.  I was also exhausted from the illness but the drowsiness really knocked me out.  I slept all day yesterday other than getting up to use the bathroom and eat.  Then I slept for 11 hours last night.   I feel significantly better today but I'm still stuck wit

I think I feel a bit better than yesterday morning but that isn't saying much.  I still feel lousy.   I'm a little over 24 hours into this rebound and I can say with absolute certainty that this rebound is far worse than the original viral infection almost two weeks ago when I tested positive for COVID. I have a fever yet again.  It comes and goes but my temperature is currently at 100.5  degrees.   My nose is itchy and sort of burning which makes me want/need to blow my nose constantly.  Tons of mucus is flowing out of it anyway.  Lying down in bed is impossible.  Within a minute or two, I'm sneezing and my face is covered in mucus from my nose.  Needless to say, I only managed to get a few minutes of sleep at a time through the night last night.  I just cannot sit up enough in bed to get some sleep but I seem to do better on the couch...  of course, I'm still sitting mostly upright on the couch when I sleep.  I'll attempt to get some much-needed sleep on the couc

I 've had COVID since we returned from Manhattan.  I tested positive the day after we returned home.  All in all, this bout with COVID seemed to be a relatively minor case.  The only troublesome symptom this time around was breathing problems requiring daily breathing exercises to help clear my lungs.  Other relatively minor symptoms were a fever that came and went a few times throughout the day, a bit of a sore throat, swollen eyelids, and joint pain.  In the past, I've experienced far, far worse so I was pretty happy and confident that this would pass relatively quickly. I was wrong.  The other night, I noticed that my sinuses were hurting.  I assumed they were hurting because they were so dry after many days of taking cold medications.  I had been taking cold medications since returning from Manhattan so I thought that perhaps the cold medications dried out my sinuses.  My plan was to stop taking the cold medications and use my saline nasal solution four times a day rather

I 'm still feeling mediocre...  not great, not terrible, sometimes feeling "fair", sometimes feeling lousy, from one to the other in waves...  overall, however, I'm feeling a bit better than yesterday so that is good.   My throat is still a bit sore and my stomach isn't the best.  I don't have much of an appetite.  My eyelids are puffy interfering with my peripheral vision which is a symptom I experienced my first time with COVID in 2020.   My headache seems to be gone and fever is mostly gone but  I'm still taking full doses of cold meds though and they have heavy doses of acetaminophen in them so that is likely taking care of any mild discomfort and fever.  I assume the cold meds are minimizing my runny nose too.   Even though I am feeling better than yesterday, I'm still not well though. Sheila, on the other hand, is getting worse even though she is still testing negative for COVID.  I suspect she does have the virus.  She never left the couch today

I spent about 24 hours sick with a stomach virus.  It wasn't horrible but it was pretty lousy.  I'm typically not a puker but I had a very difficult time keeping everything down especially when I was lying in bed.   This virus started shortly after going to bed on Mother's Day so I must have picked it up on Saturday when I went to the Post Office to send a package.  I suppose it is possible that I picked it up on Mother's Day from Whitney or Ellie but it is more likely that I picked it up the previous day at the Post Office.   I spent almost all of Sunday night going to and from the bathroom.  Even when I was not in the bathroom, lying down to sleep was not much of an option.  Lying down just allowed the puke to move upward more easily so I spent my little bit of time in bed in a sitting position.  I think I may have gotten only one to two hours of sleep Sunday night before being awoken with a mouth full of puke.  I didn't actually get any restful hours of sleep un

Just about all of my "cold and flu" symptoms seem to be behind me but my level of fatigue is still quite overwhelming.  I spent just about all of this past weekend sleeping.  I awoke only to use the bathroom, eat and take medications.   I still have some minor symptoms of a cold...  some gunk in my nose and running down the back of my throat at times.  The fever has been gone for days though so that is good.  Headaches still come and go but are so minimal at this point that they are hardly worth mentioning.  I still get bouts of difficulty breathing but that could be due to my primary illness since I do experience this regularly anyway.  What I was experiencing a month or two ago, however, was well beyond my usual breathing problems (since being on medications to control these problems).  Overall, most of these untested, undiagnosed "cold and flu" symptoms seemed to have dissipated.  The fatigue is worse than usual though.  It is lingering.  It is overwhelming. 

I haven't been writing much lately and I know that most people think that no news is good news.  That sentiment, however, is completely wrong in most cases.  We really have nothing but lousy news about lousy health to report.  I'm still knocked down with a miserable cold of some sort.  I feel quite lousy and because my body is fighting off a cold, it is making my mast cells even more active.  The mast cell disease causes my mast cells to be overactive already so adding more over-activity due to a cold makes my primary illness a bit worse.  I find myself seesawing between extra medications for my mast cell disease and extra medications for the annoying cold. All this sickness nonsense started sometime between Christmas and New Year's Eve.  I think it was a cold at that point.  Then, sometime in January it sort of progressed into a flu bug with lymph nodes swollen and painful, exhaustion, bone and joint pain, and all the typical cold and flu symptoms.   After a week or

This has been an absolutely brutal Christmas week so we have postponed Christmas until... well...  until things improve significantly. I haven't even written lately because my own health has been that poor.  I've still been trying to recover from a disastrous attempt at a colonoscopy in early September. It has been a terrible few months as far as my health goes so I have not written here in the blog nearly as often as I normally do.  Sheila is still struggling with terrible side effects of her cancer treatment.  Sleep is difficult for her for various reasons including pain, headaches and night sweats.  The sleep deprivation takes its toll on everything. On top of all that, she's even been trying to shake a nasty cold for the past two weeks. While Sheila has been trying to shake her cold, I developed her cold a few days ago and a nasty cold it is. No amount of cold medications have been able to even slow it down a little bit. I was up all through the night the other

My health often resembles a see-saw... my health swings upward and I experience relatively good days... then swings down and I experience rather miserable days... back up... back down... sometimes it balances in the middle for a relatively short period if I managed my health effectively and luck was on my side but, more often than not, it seems to move up and down like a pendulum moves side to side. Yesterday afternoon the see-saw started moving downward... after a little bit of dinner (I didn't eat much because I was feeling poorly), I had hoped that my health had leveled out in this short period before bedtime though... no such luck... Apparently, this see-saw continued on its downward swing through the night.  I was quite sick and in the bathroom for far too much of the night when I preferred to be and needed to be sleeping. Actually, I was overwhelmingly exhausted and struggling to keep my eyes open even while I was sick as a dog.  I really hate these nights. It takes a

Oh boy was yesterday a lousy day!  Earlier in the morning, I was feeling quite well. I was looking forward to some exercise and my daily physical therapy. I never got that far though... First, around lunchtime, I began to feel something wasn't right. I couldn't put my finger on the problem but I knew some lousy health to some degree was approaching. I ate lunch and then it started... As I was trying to walk my dishes to the sink, my legs would not cooperate. At first, I wondered if they had just started to fall asleep... and hoped it wasn't a mastocytosis issue... or, was this a result of my spinal injuries? My legs not cooperating to such a debilitating level was a bad sign though... my legs really were not cooperating at all...  I could barely move them. I made my way back to the couch. My bones and joints had been hurting since around Christmastime so that was nothing new and they were still hurting but the hurt was pushed to the background as some new symptoms e

A week ago, I had written about having screwed up my prescription refills. One of my medications... one which is a mast cell stabilizer and an H1 blocker...  and one which is not yet FDA-approved... had fallen through the cracks of my record-keeping and memory which means I forgot to order a refill before I had run out of this medication.  For most prescriptions, people can just run to the local pharmacy to pick up a last minute prescription. I actually do this with any acute problems I am having. I bite the bullet (taking a serious hit in cost) and I buy the prescription locally so that I can start on the medication immediately.  Unfortunately, most of my medications are absurdly expensive and going to our local retail pharmacy is not financially possible for me. For instance, one of my medications, by itself, costs upwards of $40,000 annually. If I bought this medication locally rather than through my insurance plan's mail order program there would be two problems... 1. The c

I had thought it was a pretty lousy night last night with all that nausea... tonight has been far worse being sick as a dog in the bathroom. I had some sudden anaphylactic-type symptoms as well as nausea and stomach cramps... then all the even worse miserable symptoms hit and I spent far too much time and energy being sick. I've now taken my nighttime medications, extra medications and emergency medications... and, right now, I feel rather poorly which is a significant improvement from my time in the bathroom... but, I feel as though I'll probably be back in the bathroom before long... I'd just like to sleep peacefully.... UPDATE:  It is the following morning and my biggest issue this morning is that I am worn out, generally feeling lousy and I am groggy from the emergency medications. Oh... and these emergency medications make me very hungry!  

I've been feeling a bit better the past few days as related to the lingering cold that Sheila and I have been struggling with since January. Now I am struggling with lingering fatigue... an oppressingly overwhelming fatigue which defies any accurate description. I slept for 11 hours last night... 10 hours a night has been the norm since this cold started in January. I've also been sleeping for 3-4 hours every afternoon... and, sometimes, I've been napping for upwards of 5 hours. That doesn't leave much time awake each day! I manage to get beyond breakfast each day... make my lunch... but then have no energy for cooking dinner. I rarely even have the energy to shower although I do shower on some days but must skip breakfast in order to save some energy so I can shower.   Energy management... everything is a trade-off. My body is rundown and I can't seem to accomplish much. Needless to say, I am quite bored and feel the need to accomplish something.  A fe

For most people, a cold is an annoyance... an inconvenience... a nagging little problem of needing tissues nearby and having some over-the-counter cold medications. For those struggling with other illnesses, like my own illness, a cold can be brutal. My illness, Systemic Mastocytosis, causes overactive mast cells, all day, every day... an abundance of mast cells... and, since mast cells are at the center of immunology, this means I have an over-active immune system.  Because of these overactive mast cells attacking all sorts of things within my body which it should not, I often have symptoms of a typical cold even on a good day. I have too much histamine in my body. I have too much of every mediator produced by mast cells which causes all sorts of problems including some life threatening problems.  Now... add a virus or a cold to this already unhealthy body...  During a typical cold, my mast cells get even more over-active... moving into hyper-activity. This causes some absolut