Posts

Showing posts from August 3, 2014

Dark and Quiet

The back corner of our home, which lately has been bright and filled with the clutter, sounds and smells of construction, is dark and quiet today. I suspect things will remain this way for the rest of the week and through the weekend as I try to recover from yet another bout of poor health. I awoke feeling like I had been hit by a train. My bones hurt... "hurt"... that word doesn't even come close to accurately describing how my bones feel. My joints also hurt to the same level as my bone pain. My spine is inflamed and I can feel every injury my spine has ever endured... and, believe me, these injuries were many, severe and extensive leaving me with two herniated disks, four bulging disks, six compressed disks, two areas with spinal stenosis, osteophytosis, and a broken up disk and vertebra in my cervical spine. These injuries have left me almost two inches shorter and in pain every day. Now, add in all my bone and joint pain and this is what I felt as I awoke this morn

Stubborn Holes

Image
I've been actively working on building and installing a new half bath in our house over the past couple of weeks. "Actively working", considering my health, means working on it only on relatively good health days for a few hours each morning. To say this is a slow moving project is an accurate statement. One of the problems with only working on a project of this sort a few hours at a time is that I spend far too much time setting up, cleaning up and searching for tools I put away a night or a few nights earlier. Unfortunately, I don't have the energy to do anything longer than a few hours in a day so I do what I can when I am feeling capable. My health is kind of lousy today and tonight so I am spending a little time on the computer and thought I should share about a problem I had with this bathroom project over the past few days... The new drill and hole saw necessary for this small half bathroom installation. The latest frustrating problems arose while w

Rough Day of Pain

My latest dip in health started late last night. Nausea and associated lower gastro-intestinal issues kept me in the bathroom for an hour or two. (I really need to get that second bathroom finished... my current project.) In the big scheme of things, last night was not miserable but I knew it was a sign that things would deteriorate further today. There are all sorts of signs of quickly deteriorating health for Systemic Mastocytosis patients. During these periods, we become much more vulnerable to idiopathic anaphylaxis as our mast cells continue to degranulate at a rate which is much more disastrous than what should be normal. With this mast cell degranulation comes nerve irritation, inflammation and excruciating pain. My morning started with some minor cognitive issues. Needless to say, any cognitive difficulties makes home renovations next to impossible. As a result, I spent much of the morning researching and taking notes related to my next tasks in our home renovations rather