Scattered Thoughts . . .

Those of us struggling with Systemic Mastocytosis, and all its variants, have to contend daily with a long list of symptoms. These symptoms are sometimes mild and sometimes debilitating. The symptoms can affect my legs one day and my brain the next. Sometimes symptoms are neurological in nature and sometimes they are affecting my organs. Sometimes symptoms affect my gastro-intestinal tract and sometimes symptoms affect my skin like a burning, hyper-sensitive rash. Sometimes the symptoms can be widespread throughout my body all at the same time. There seems to be little rhyme or reason to it. One common symptom which can be relatively mild or excruciatingly debilitating is bone and joint pain. Today has been excruciatingly debilitating with this far too typical bone and joint pain.  All my long bones hurt... this is a deep pain felt to the core of my body. All my joints feel like they are being stabbed particularly when using them. Even opening a previously opened jar is so painful

When Windows 8 was first released two years ago, I must admit that I found the user interface a bit flat-looking and difficult to navigate. I would try it out at our local stores and always left feeling frustrated because I couldn't figure out how to move around within this new operating system. Well, about two weeks ago, my main desktop computer croaked suddenly. This computer was my main workhorse for graphics, art and photography so it takes much more of a beating than most people's computers. The computer was suddenly non-responsive. It didn't even sound right to me. To make a long story short, I needed a new computer and I needed it as quickly as possible. Two weeks later, I finally have a new desktop computer up and running and configured for my own needs.  I had the option of buying another computer with Windows 7 or I could opt for the newer Windows 8. It really seemed silly to be buying a new computer with a considerably older operating system so I did some

The kids visited us a couple of weeks ago and, as always, we had a nice time. We're overdue for a visit with them again but the house has been a dangerous construction zone the past couple of weeks. Grammy read them a book and then they started watching "Nemo" ... It didn't take long before they were both snoozing and drooling on the couch. Once they fell asleep, I grabbed my camera to get a few shots of the sun falling on their faces during their naps...

Last weekend, I decided it was time to tackle the most difficult part of the waste plumbing project for our new half bathroom. Designing this plumbing was a bit of a challenge because of the very tight, cramped quarters. Not only is everything very close together providing little room for pipes to change directions, but there was very little room to work! Part of my struggles with Systemic Mastocytosis includes cognitive difficulties as well so this hindered my ability to effectively design a drainage plan for this new bathroom.  I must have been having an unusually good day a few weeks ago when I finally was able to clearly envision what I needed to do and I was able to sketch some plans. What is photographed here wass the first part of this project... cutting into the existing waste line and installing a new waste line with fittings for the new toilet, pedestal lavatory, our washing machine, and two new plumbing vents to the roof... all in a very tiny space!  I'm no small

I've been really busy with adding a small half bath to the house lately. Unfortunately, I still have my regular bouts with quite lousy health too. The combination of these two things leaves little time nor energy to get anything else accomplished around the house. One thing I've let go over the past couple of weeks is the lawn. I had some really crappy health yesterday which kept me very close to the bathroom all day so that means it was very difficult to have a productive day. Even on a relatively "good" day, I am only capable of a couple of hours of work at about half speed, at best. On fairly lousy days, I'm lucky if I can clean myself and cook for myself so simple household chores get put on hold quite regularly because of my health. On miserable days, I can do nothing and just walking to and from the bathroom requires more energy than I have to spare. This morning I felt halfway decent and the weather was nice and cool (my health crashes rather quickl