Posts

Showing posts from August 25, 2013

Small Project Accomplished!

Image
In my blog post yesterday, I mentioned that getting tasks and projects accomplished  around the house  the past few months   has been difficult, if not impossible, because my energy level is so low.  At low energy times like these, just collecting the tools I need for a specific task or project is enough to wear me out for the day. I suppose the first thing I should explain is what I mean by "wears me out for the day" and "no energy"... What I mean here is that I barely have the energy to walk across a room.  My legs are weak, wobbly and feel as though they could collapse at any time.  I get winded just trying to walk a few feet.  Nausea overcomes me.  My bones and joints hurt...  especially my spinal injuries, but also my ribs, pelvis, legs, knees, ankles and feet.  Sometimes my hands and fingers hurt so bad I cannot hold anything without excruciating pain.  I drop things...  I stumble and trip on things. My energy level is so low that simply trying to hold a

Summer Break from Medical Appointments is Over

Since being clobbered by Systemic Mastocytosis well over a decade ago, I often have a full schedule of medical appointments and diagnostic testing.  A few years ago, I decided that I just could not keep up this schedule year-round so have consistently taken a break each and every summer.   Now the summer is over and my calendar indicates I need to head to the hospital next week.  I also received a phone call from my primary care doc this afternoon informing me I need to come in for a complete physical.  My energy level has never been as low as it has over the past two months.  I wore myself down at the lake house in mid-June and I just have not recovered.  When I attempt to accomplish something around the house, just collecting tools has been enough to wear me down enough that I can do nothing more.  Then I struggle finding the energy to put all the tools away...  never accomplishing anything other than wearing myself down unnecessarily.   Needless to say, having no energy while

Not Attending Academy Graduation

At this time, I should be heading down to Springfield, Vermont for Adam's graduation from the Civil Air Patrol Northeast Region Glider Academy.  However, I will not be attending this graduation. There has been much frustration over how this Academy has been coordinated and managed in the months before Adam arrived for his session.  While Adam was attending the Academy this past week, this frustration boiled over into intense anger due to unprofessional behavior by an instructor at the Academy which could be described as immature and unprofessional, at best.  His behavior certainly was childish and inappropriate.  More importantly, his behavior showed no apparent signs of integrity nor excellence, both of which are core values that these instructors are tasked with instilling in their cadet students.  His subsequent actions (read inactions) have shown no acknowledgement of wrongdoing nor remorse. This incident has left me so incensed and deeply disturbed that my 'inner drill