Scattered Thoughts . . .

L ast night I received a short note from my Oncologist about one of my most recent test results from tests done a month ago.  It is a relatively new test and so had to go to a separate lab.   I didn't see this note from my oncologist until we were heading to bed so this new information kept us up for another hour or so while we talked about it and what this possibly means for our immediate future as well as for the bigger, longer-term picture.   To be honest, I really wasn't expecting anything other than negative results from this new test so I have to admit I was a bit surprised to see that this time the results were positive.   This is a relatively new test that I had to pay in advance fully because no insurance companies are covering it just yet.  Although a relatively new test, it is a test result that can explain critically and chronically poor health like I am experiencing.  Naturally, this test also provides us with not only an additio...

I didn't accomplish much of anything today.  I'm still dealing with fevers coming and going throughout each day since my tick bite.  My fever(s) never got above 100 degrees today so that is sort of good.   I'm still generally feeling quite lousy and  I also had difficulty focusing on any one task so I ended up bouncing from one thing to another within minutes, never really accomplishing anything.    I'm still in quite a bit of pain which certainly affects my ability to focus...  although the pain isn't as bad as yesterday but I'm still in pain.  My joints and my muscles hurt.  I have a bit of a headache too.   I stayed indoors today with the exception of wandering outside first thing this morning to water the flowers.  The first thing this morning the temperature outside was already up near 80 degrees!  Other than that, I was indoors all day long.  The weather was in the 90s again today and I don't do well in th...

I figured I would add a short health update here this evening.   I'm still waiting on some of the results from the bone marrow biopsy to come back but I think most of the results have come back at this point.  One pathology report is actually hidden from me and has been hidden from me for the past week which likely means there is something in that particular report that needs to be discussed (ie, not the best of news).  I meet with my oncologist again in three weeks, I think...  maybe in two weeks.  For some reason, the 18th of April is standing out in my mind though so it is probably in three weeks.  Naturally, until I meet with my oncologist, I will have no definitive answers.  Actually, I still may not get any definitive answers when I meet with her since we're (well, really our health professionals) still learning about this crappy illness.   That being said, there are some concerning test results that have come back since my biopsy....

W e had planned to go to Kenzie's figure skating dress rehearsal yesterday.  I had been feeling fairly well on Friday and Saturday so it was looking like I would be able to attend this event.   I packed up my camera gear so I could take some photos, dressed appropriately for a cold ice rink, and then we headed out to the car.  Within about five minutes of our drive, I started having breathing difficulties again.  I waited another five minutes to see if my health would settle down and then I told Sheila we should turn around and head home.  I waited until just before we got on the highway.  There is a roundabout there at the highway overpass so we just turned around at the roundabout and headed back home.  I wasn't feeling so lousy that I would need help so I felt I could stay home alone this time.  I told Sheila that she should go to Kenzie's figure skating event without me so she just dropped me off at the house and then hit the road again....