Scattered Thoughts . . .

My night through the night was quite lousy last night.  We went to bed at around 10pm but I was not sleepy just yet which, I assume, was due to all the steroids in my body at this point.  Sheila fell asleep quickly but I stayed up and read for a while. I was still needing to get up to use the bathroom every hour too.  I think this was due to all the extra antihistamines I have been taking daily for the past week as well as because of all the extra water I had been drinking throughout the day.  These short bathroom trips were clearly cutting into my sleep too. Then, at 2am, I had some minor difficulties breathing.  It resolved itself within about ten minutes but that was a sign that I clearly am still seesawing back toward anaphylaxis.  It is happening much less frequently now and the severity is much less now too but that seesawing is still occurring it seems.   It is sort of like a swinging pendulum...   Early on, this pendulum was swing quickly and swinging high toward significant pr

This evening was the last dose of my steroid therapy.  We're hoping this short term therapy will be enough to help me recover from the severe systemic mastocytosis anaphylactic episode I had last week and has been plaguing me on and off for the past week. The headaches which are perhaps the most common side effect of Prednisone started yesterday for me.  I had a headache all through the night last night and today the headache has been worse.  Needless to say, I'm glad that tonight was my last dose.   On the positive side, I am feeling a little more stable this evening.  I don't think I've had any breathing problems since last night...  so...  that would be the first 24 hour period without a seesawing back toward an anaphylactic low.  So, that is definitely good news.   I suspect the headaches will linger for a couple or few days and taper off slowly.  Headaches can be prevalent in systemic mastocytosis too but I'm hoping my headaches are due to the Prednisone since