Scattered Thoughts . . .

I often write about and harp upon the need for understanding when it comes to people struggling with chronic illness and/or life threatening illnesses. Tonight it is time for me to harp on this yet again because Sheila is hurt and I am subsequently angry and rapidly losing my patience with far too many people who don't seem to "understand". As a result of this lack of understanding, I am truly at my wits' end and we are exceptionally close to again shrinking our circle of family and friends if this very tiring behavior does not change. I, myself, have a long list of health issues and struggle with significant disabilities every day. The major difference today, however, is that I am referring to and coming to the defense of Sheila since she is very upset right now and has been very upset at the last two family events because of this rather callous behavior. It has gotten to the point where Sheila actually dreads attending any family events because so many people na

I have so many health problems that I often forget about some of them until they are thrust back into the forefront of my mind and life. Some of these temporarily forgotten health problems are incurable things like cancer, tumors, and variations of Systemic Mastocytosis symptoms which make their appearances much less frequently. My primary illness, Systemic Mastocytosis, is in the forefront most days. My spinal injuries are in the forefront at all times because these injuries affect everything I want to do, everything I attempt to do and the pain never goes away. Sometimes, however, something happens or I see something to remind me of the things which I do purposefully push to the back of my mind and would prefer to forget.  I suppose this idea of pushing things to the back of one's mind is a way of coping. I purposely try to let go of all the things I cannot control. I don't want to needlessly worry about these things because, hey, I really can't do a damn thing about