Scattered Thoughts . . .

M y morning started out better than I have experienced since we were in Manhattan last month which was quite a relief for a change.  I was feeling well and I was up an hour before Sheila so I managed to get a few little things accomplished around the house that I had been putting off for more than three weeks because I had been so sick.  I showered and then Sheila got up out of bed. After just an hour of little everyday things around the house that everyone takes for granted without a single thought of how they will accomplish it, that was about it for me. I started feeling exhausted.  I was starving.  Before long, I was dizzy, I was having more difficulty breathing, my vision was narrowing and my peripheral vision was filled with sparkly grayness.  I've experienced this many times, especially in the past year after my previous COVID infection, so I quickly identified it as the cascading symptoms of anaphylaxis.  I grabbed my epinephrine and some of my emergency medications and did

My health is on a roll again... absolutely miserable, poor, lousy, and exceptionally painful health which has been far too consistent lately. I couldn't sleep again last night... I have a million things I must get done and I can't do any of them right now.  Funny...  I had thought I was already in a lousy mood yesterday... compared to my mood today, my mood yesterday was quite pleasant.  It will be another long, brutal day today.  Maybe I'll look for some other photos from that 2013 trip to Manhattan...

I wrote earlier this morning that I was thinking I would need to keep from wandering from the house. I just wasn't feeling "right" at the time. I was exhausted from lack of sleep. I was in pain from the effects of Systemic Mastocytosis and extensive spinal injuries. Common sense was telling me I needed to stick close to home. Well, when Sheila arrived home from work she reminded me that I needed to drop my car off at the mechanic's garage this evening. Unfortunately, my health had already begun to crash. Rather than getting a much needed nap this afternoon, I spent much of the afternoon in and out of the bathroom. Ooooo... fun time, let me tell you! Now I definitely needed to wander from the house to drop off the car. Regardless of my health, I really needed to drop my car off for this appointment. I haven't driven my car at all in about two months because it needs some work and even before that I had only driven less than 3000 miles in the past year. The car

I honestly don't know how often I write about it, but it is time to write about it again even if I have written about it often.  Fatigue is something I struggle with every day, all day. The past week or so has been pretty lousy when it comes to the energy vs fatigue struggle so I thought it would be a good time to write about it. "Overwhelming fatigue" is a much more accurate term than simply saying "fatigue". Telling my doctors that I am "fatigued" doesn't even come close to describing this debilitating symptom. Just saying "fatigue" sounds silly... childish... minuscule... not worth mentioning... it seems like something a nap will cure. Even calling it "overwhelming fatigue" doesn't seem to cut it either but it is the best term I know. I've had mononucleosis three times in my life (thus far) and I have always said I would never wish that fatigue on anyone... not even on my worst enemy. This overwhelming fatigue th