A Few Steps Backward Far Too Often
Struggling with Systemic Mastocytosis, in any of its forms, makes the ability to be productive both difficult and frustrating. The desire to be productive is there... The desire to accomplish just one small thing on our continually growing to-do list is there... And, the frustration of how this insidious illness hinders all we try to do is always there. Those of us with this illness are familiar with the occasional "good" day. We call these occasional days a "good" day but, for us, "good" is a relative term. For us, good simply means this moment is better than the previous. In reality and more accurately speaking, all days with this illness are a struggle, at best. Some moments are just better than others and it is these better moments which we refer to as "good". Sometimes, however, a week such as this past week just slowly spirals downward. It can start with one noticeable symptom... in my case this week, I noticed a problem with my vision.