Scattered Thoughts . . .

A s I mentioned in a previous blog entry, I had another appointment with my oncologist the other day.  This morning we took a trip up to the hospital to run some tests. The other day, my oncologist and I discussed my current health, obviously, as well as some new treatments that have very recently been FDA approved for my rare illness.  These are the first two approved treatments specifically for my rare illness.  I spent some time over the past two days researching these treatments and discussing them with Sheila. First, let me start by saying that I'm fairly confident that my health is not  at a point where I think either of these drugs should be necessary.  My oncologist is simply trying to help improve my daily life.  She also wants to ensure that we aren't putting my health on the back burner instead of quickly jumping on treating something that is treatable but could quickly become life-threatening if left untreated.   One of the newly approved drugs to treat my rare illn

Sue's ICU room reflected in the windows overlooking Lake Champlain and the Adirondack Mountains. It has been a couple of days of serious reflection and I even captured a photo of this in a literal sense. We just can't seem to break away from the hospital! We certainly are on a consistent roll between me, Sheila and now Sheila's mom, Sue. The past couple of days have been spent at the hospital with Sue and we expect to do the same through the long weekend ahead.  Sue certainly has had a rough couple of days and she really had all of us worried yesterday! (And there are a lot of "us" in Sue's life!) The next few weeks promise to be quite rough for her as she continues to slowly heal. On the positive side, Sue is now stable and, hopefully, steadily healing.  Sue slipped on the ice right outside their garage yesterday morning... slammed to the ground... left with visible bruising, a bloodied head and a relatively small bleed on the brain. She doesn