Scattered Thoughts . . .

O ther than writing about my badly sprained ankle, I haven't written much about my health lately so I figured I should attempt to write some stuff down.   Overall, my typical mast cell disease stuff has been 'typical'.  That means occasional anaphylaxic symptoms, breathing difficulties, dizziness, lightheadedness, and a lot of joint and bone pain.  Plus, regular gastro-intestinal problems, nausea, and too much time spent in a bathroom.   What has been worse for the past year...  far worse...  is the brain fog.  This may have been compounded by fighting off COVID-19 a year ago.  I have had brain fog throughout all my mast cell disease but it has been far, far worse in recent months.  I become non-functional for anything other than simply surviving from day to day.   While fighting off the virus last year, I also had consistent problems with vision and hearing.  My eyes were swollen and it seemed like I had a torn retina but that was probably due to the swelling in my eyes. 

I just thought I'd write a quick update on Sheila's treatment problems.   After the ER visit a few weeks ago, Sheila's Oncology team decided that the significant symptoms she was experiencing were probably not due to her new treatment drug.  Since they were fairly certain that the treatment wasn't presenting these significant symptoms as side effects of the treatment drug, we came up with a plan to get back on the treatment plan and give it a shot again. Unfortunately, Sheila was back on this particular treatment drug only two days before one of the significant symptoms appeared again... and now it is only a week later and both of the significant symptoms that landed her in the ER are back again. At this point, we're both quite certain that these are actually side effects of her cancer treatment and they are far too severe to be tolerated for a long term treatment plan. Right now, these symptoms are more mild than the first time around but it is still only a m