Scattered Thoughts . . .

Those who are following this blog fairly regularly, probably already know I've been struggling for about a year with the idea of whether or not it is time to purchase a wheelchair. Well, there now is no doubt that I am well beyond the need to purchase a wheelchair for those times when my legs and/or spine are not cooperating with my brain or for when walking is far too difficult... no doubt whatsoever.  What I am now struggling with is choosing a wheelchair suited to my needs. Some wheelchairs are designed for those with foot or leg issues. Some wheelchairs are designed for those permanently needing a wheelchair for mobility. Some wheelchairs are designed to be controlled by a caregiver while other wheelchairs are designed to be self-propelled. Some wheelchairs are adjustable one way but not other ways... some are adjustable in different ways... while some wheelchairs are not adjustable in any way other than folding for storage.  Of course, I've never really noticed sign

I started a rather small repair/renovation in our master bathroom about two weeks ago and my health is interfering enough to continue to put this small project on hold. As of today, this bathroom is still only partially usable... it sits in a vulnerable, unfinished state with bare wood exposed to a humid room (we are still using the shower daily) as I wait for my health to recover.  This time, the primary issue keeping me from this project is related to my extensive spinal injuries rather than my Systemic Mastocytosis. Although the past few days have been more about recovering from Systemic Mastocytosis problems, overall, my extensive spinal injuries have interfered with this project more than anything else. We've had to cancel a few other plans recently because of these issues as well. That is never fun. Everytime I need to cancel social plans because of my health, I worry that people will just stop inviting us to social events because we cancel our plans so often. This just a