Scattered Thoughts . . .

Sheila is recovering from her hospital visit a few days ago and we're ready to jump into more medical appointments for her. On the positive side, she is slowly recovering and feeling better. We're still waiting to see her Oncologist and her Primary Care doctor early this week to discuss these newest problems but, for now, she is feeling more stable.  My health, however, is taking a serious hit. I went out to mow the lawn after breakfast yesterday morning since it was a first day in a week that we finally had dry grass. It was beginning to get warm so I opted to forego pulling out the weed-whacker and just do a relatively quick mow. I figured I needed to minimize my time out in the sun, heat and humidity so I skipped the weed-whacking. My health does not do well in the heat and Saturday was a bit warm and quite humid. I knew the wisest thing to do would be to just run the mower over the lawn as quickly as possible without overdoing it and then get out of the heat.  About

I've had some fairly stable health for the past week or two. It is always nice when this happens and especially so when it is Christmastime. Today, however, my health hit its limit... This evening, I awoke on the couch... laptop in my lap... still opened, still running, and still showing the model railroading page I was viewing... I was freezing... a bit groggier than usual after a nap...  a nap? "Wait a minute... I didn't lay down for a nap yet!" I looked at the clock... it was showing 4:30pm...  last thing I remembered, it was about 2pm and I was researching some model railroading stuff on the laptop... laptop balancing on my legs... I "awoke" in the same exact position with the computer still sitting on my lap.  What is unusual about this is that because of my spinal issues, I never stay in the same position for more than ten or fifteen minutes because the pain is too uncomfortable. I'm constantly changing positions and rolling over whenever I

As I wrote in my previous blog entry, my night last night was less than stellar as a result of some pretty lousy health. It turns out that today has been no better. Actually, today has been worse than all the time spent in the bathroom in the middle of the night last night. I've had difficulty breathing. I've been very weak. My bones hurt like only a Systemic Mastocytosis patient could understand. I'm overwhelmingly exhausted. I'm nauseated. And, after lunch, my throat was inflamed and a bit swollen. Then I passed out.  When I awoke a few hours later, all the symptoms were still present so I knew it was time for my emergency medications.  I've needed epinephrine today and I also needed to take some other emergency medications to try to stabilize my mast cells. Most of these medications cause drowsiness. Compounding this drowsiness issue is the fact that this huge cellular reaction inside my body causes indescribable fatigue also.  I really hate taking these