Scattered Thoughts . . .

T he past two nights have been quite lousy.  My health has been so lousy that I needed to use epinephrine during the night last night.   During my previous bouts of COVID, my doctors have assumed that COVID is causing an undesired response in my primary illness.  It causes inflammation which causes a response by my mast cells.  I already have a life threatening issue with inflammation and mast cells so anything that exasperates this is not a good thing.  So, in response, I need to throw medications at both problems.   I awoke in the middle of the night after only an hour or two of sleep both last night and the night before last.  I was having difficulty breathing both nights.  This was clearly a case of needing to clear out my lungs because, as I would do some coughing and huffing, I could get a little bit of phlegm to come up and that always seemed to help my breathing enough to be able to get back to sleep. Last night, however, regardless of some phlegm coming up from my lungs, I was

M y body is having some difficulty recovering from this latest mast cell episode of anaphylaxis.  While I was napping this afternoon, my oncologist wrote to me advising to start on steroid therapy.  Apparently, I'll need that added to all my usual medications to help recover.   I'm not feeling well enough to write much of anything at the moment so I'll just leave this blog entry at...  we'll see how that goes...

My health has been quite lousy since January. Sheila and I seem to be passing a cold and a stomach bug back and forth between us, over and over. These types of 'common colds' always send my mast cells into a hyperactive tailspin so I'm having great difficulty focusing on anything because my thought processes are a muddled mess! I have a dozen different projects bouncing around in my head all at once. Most of these projects I actually want to accomplish... some I  need to accomplish as soon as I am feeling well enough... and all of these projects are occupying my thoughts at any given moment. If I'm not struggling with nausea and spending time in the bathroom, I'm struggling with pain and overwhelming fatigue. Sheila hasn't been much better lately. I feel as though I am spending all my time in bed, sleeping away the winter as projects keep backing up and my to-do list gets longer and longer. My spinal injuries are terribly inflamed. I assume much of t

Last night was... brutal.  The lousy health started to hit me while I was cooking dinner... country fried steak, pan roasted potatoes, country gravy and a big pan of fried okra. With four burners on the stove going at once, it was far too hot for me.  Heat is a major trigger for me. Warmer environments for anything longer than a few minutes will trigger my Systemic Mastocytosis episodes. These episodes can simply be painfully debilitating with only a few symptoms and/or they can include life threatening symptoms such as anaphylaxis. After cooking dinner, I couldn't even eat... I was nauseated beyond belief... and, generally, felt quite lousy. I knew my body was crashing but, apparently, I was not thinking clearly which is another symptom... diminished cognitive reasoning. I should have taken some emergency medications at this point but didn't think of it at the time. By the time we finished dinner, my nausea was still constant but I was experiencing worsening waves of n

Shortly after publishing my last post here last night, my health crashed. I had been feeling 'uncomfortable' all night long. Actually, I had been feeling uncomfortable and a little bit 'off' for the past few days so I knew something was amiss and my health would be crashing before long. What I knew was coming hit me in the wee hours of the morning last night. My stomach had been gurgling and making all sorts of noises all day long. This typically is an indication that gastro-intestinal problems are forecast. This held true last night. For those of us struggling with Systemic Mastocytosis, our mast cells indiscriminately choose an organ to attack (for lack of a better medical term... clinically speaking, "attack" is an appropriate description though). Mast cells control many bodily functions and are very important defensive cells in immunology, allergy, and infection. The problem is that my mast cells will respond/attack anywhere in my body for no known r

The past two days were relatively productive days for me for a much needed change. I still ran out of energy within a few hours each day but I managed to get a few things accomplished. I feel as though I have not been 'productive' since I built our fireplace in December so this was a much appreciated and refreshing change to have a couple of productive mornings this week! The weather was nice so I was able to pull the table saw out of the shed so I could cut some wood. I have to admit, however, that just collecting tools was almost enough of an energy drain that I needed to call it a day.  I managed to slow down enough to keep up enough energy to make it until lunchtime. After that, I was so spent that just the simple act of putting tools away was impossible. Yesterday morning I did a little bit of staining... typically, this doesn't affect me too badly but yesterday was an exception. While I was cleaning my brush, my tongue started tingling and then, within a few momen