Scattered Thoughts . . .

The past few days, Sunday through Tuesday, have been spent recovering from a busy day over the weekend.  Whenever I use a lot of energy, my health really suffers and it can take days or weeks to recover. This past Saturday was a very busy day for me and I used a lot of energy which was compounded by missing my much-needed daily nap. Even on a good day, I need to lay down for a few hours every afternoon. That never happened on Saturday though. So... what happens if I wear myself down? The best case scenario would be that I am simply fatigued at an overwhelming level for a few days. This fatigue makes just showering or cooking for myself impossible at times. Sometimes the fatigue gets so bad that walking to the other side of the house is a daunting task. Even reading can require more energy than I have to use! Worst case scenario would be that in addition to the overwhelming fatigue, my overall health suffers significantly resulting in breathing difficulties, dizziness, cognitive d

After a lousy evening last night with some painful and debilitating health issues which left me drained, weak, and having difficulty just walking across a room, I am having a surprisingly "good" morning! The pain I experienced the last few days was miserable and last night that pain moved into the area of my kidneys only making the pain more widespread and bordering on intolerable. I am feeling a bit better this morning. Of course, this is with the help of some extra emergency medications which come with their own problems and side-effects but these medications have elevated my health into a far better place overall. I also managed to get some extra sleep last night which is always good. I had enough energy this morning to shower and shave. I was even thinking clearly enough to fix an email issue I've had for the past few days! I was having such cognitive difficulties that I could not figure out how to resolve this email issue. (Incidentally, my web hosting service co

This past week or so has been incredibly difficult, quite lousy and, at times, downright miserable. Difficulty breathing causing huffing and puffing after simply walking from one room to the next... dizziness... cutaneous mastocytosis rash on my thighs and torso which is itchy, irritated and inflamed and clothes only irritate the problems more... overwhelming fatigue... I cannot possibly accurately express just how debilitating and overwhelming the fatigue actually has been the past few days. This morning, I was sitting in the bathroom thinking about what I could possibly accomplish today. Just the thought of standing up and walking back to my bedroom was overwhelming and seemed like 'mission impossible'. I had to wash my face... I felt all greasy and grimy... however, I knew that if I used any energy to wash my face, I probably would just need to lay down on the bathroom floor rather than my comfortable bed in the bedroom.  I knew I just would not find the energy to walk b