Scattered Thoughts . . .

I wrote earlier this morning that I was thinking I would need to keep from wandering from the house. I just wasn't feeling "right" at the time. I was exhausted from lack of sleep. I was in pain from the effects of Systemic Mastocytosis and extensive spinal injuries. Common sense was telling me I needed to stick close to home. Well, when Sheila arrived home from work she reminded me that I needed to drop my car off at the mechanic's garage this evening. Unfortunately, my health had already begun to crash. Rather than getting a much needed nap this afternoon, I spent much of the afternoon in and out of the bathroom. Ooooo... fun time, let me tell you! Now I definitely needed to wander from the house to drop off the car. Regardless of my health, I really needed to drop my car off for this appointment. I haven't driven my car at all in about two months because it needs some work and even before that I had only driven less than 3000 miles in the past year. The car

I am back into recovery mode.  It is funny...  well... maybe "funny" isn't really the most accurate adjective... but, even after having Systemic Mastocytosis for more than 10 years, I still forget how much down time my body and health requires. It isn't until I have tasks and projects stacked up like aircraft in a holding pattern waiting to land at a crippled airfield that I clearly hear that voice... "Hey... hey you, there... you are sick! What makes you think you could make plans to get things accomplished like a healthy person? Do you need another reminder of just how sick you are?"  Then I suddenly get whacked with crappy health. Last night we trekked up to Lowes to pick up a few more patio blocks (I learned long ago that I need to break all projects down into small tasks... we need more than a "few" patio blocks but I can only handle a few at a time) for our kitchen grilling area project in the backyard. We had no problems with that other

I've never really been a big fan of poultry even before my illness. In fact, you would often find me in the backyard at the grill with a thick, juicy steak on Thanksgiving Day while my family was inside waiting for some tasteless bird to come out of the oven. Don't get me wrong, I love tasty grilled chicken... deep fried chicken... chicken parmesan...  chicken curry... and even chicken cacciatore... but I'm really someone who loves beef and pork. Poultry is rarely something I would order in a nice restaurant (and never something I order in a less-than-nice restaurant if I feel I may get bad poultry).  Even when I was healthy, before this insidious illness, chicken would make me feel slimey and I would be hungry again within an hour. Fish would affect me the same way. I always just figured that I am more of a hearty meat and potatoes sort of guy. And, let's be honest, I am, always have been, and always will be a meat and potatoes sort of guy. It turns out that perhap

When I was writing about my health last night (my previous blog post), I knew my health was not headed in the direction I had hoped. I suspected it might be a long night... and, although it was not as miserable as it often gets, it was indeed a long night spent in the bathroom feeling rather miserable. The nausea continued to worsen as I was typing last night. My breathing didn't get worse, but it did not improve much with epinephrine sprayed into my lungs. That provided only temporary relief allowing me to get some much needed oxygen into my body by opening up my constricted lungs if only briefly each time.   Eventually my intestines started gurgling... a sure sign that I must find a bathroom quickly and that I must take some extra emergency medications as soon as possible (it is difficult to do when you are sick as a dog). The gurgling intestines definitely created a need to spend some time in the bathroom through the night last night... oh, fun times! My episode and post-e

Yesterday... it was brutal for a couple of hours. I was in and out of the bathroom, terribly sick and nauseated, and teetering on complete anaphylaxis. It was not a pleasant few hours. Systemic Mastocytosis is a rare illness in which the body's mast cells will indiscriminately 'attack' the body rather than their usual enemies such as wounds, pathogens and allergy. During this process, the mast cells will release a bunch of mediators which causes countless symptoms including anaphylaxis.  Typically, I do well at handling most of the resulting symptoms but anaphylaxis is a tough one to handle. When all these mediators are dumped into the body by my mast cells, my body responds by going into anaphylactic shock or at least bordering on anaphylactic shock or anaphylaxis. Yesterday, after breakfast, I started feeling rather poorly. My stomach was bothering me. I was a bit nauseated. Before long, I knew I would be sick and in the bathroom. I checked for my pulse... I had a

This entire week has been one health problem after another. I honestly was fighting back tears as my health crashed into anaphylaxis last night. The tears weren't because of pain nor simply because I was feeling miserable. The tears were because I have been so unproductive this week and I now had to accept the fact that the next few days would be, at best, a recovery period of more nonproductivity. This weighs so heavily on me, I suppose, because I want to do so many things around the house but can't... because each day I lose due to this debilitating illness, is one less day I will have in my life. Now, once again, I didn't just lose another day, I just lost a full work-week and this downtime of nothingness promises to be longer. We were doing some light shopping in Williston and South Burlington last night... the first store we visited was all it took. As we were walking into Bed, Bath & Beyond (we hadn't even entered the store yet), I was experiencing breathing